Sarah Shira

Director of Global Patient Outreach & Community Strategies

 
Ms. Shira brings a diverse background from both artistic and corporate communities. She attended New York University/TSOA receiving a BFA, the J.S. Siedman Award and was nominated by NYU faculty for the Princess Grace Award. She later held faculty positions in the arts, worked in corporate production for an internet based startup and contracted independently for real estate services.

Ms. Shira leads and implements the Jain Foundation's patient recruitment and diagnostic efforts globally.  She interacts extensively with patients, neurologists, clinicians and researchers educating, coordinating and collaborating in an effort to bring diagnostics and therapeutics into the clinic. She develops and manages the foundation’s dysferlinopathy patient registry, the family foundation's consortium program and  works with other disease foundations to identify patients with dysferlinopathy, analyzes patient data, and develops policies and procedures related to the foundation's mission.