Home

Main menu

  • Home
  • Patient Registration
  • Apply For Funding
  • Contact Us
  • Our Dysferlin Research Institute
    • Institute Overview
    • Dysferlin Background
    • Publications
    • Therapeutic Strategies
    • Research Tools
    • Funded Projects
    • Scientific Forum
    • Conferences
    • Apply For Funding
  • Patient & Physician Resources
    • Resources Overview
    • Learning Center
    • Clinical Studies and Trials
    • Patient Registration
    • Diagnostic Resources
    • LGMD Subtyping Diagnosis Tool
    • Physician Referrals
    • Patient Stories
    • Patient Community
    • Helpful Links
  • About Us
    • Foundation Overview
    • Mission
    • Team
    • Funding Statistics
    • Progress Metrics
    • Funding Model
    • Contact Us
Home › Patient & Physician Resources › Clinical Studies and Trials › International Clinical Outcome Study for Dysferlinopathy (LGMD2B/Miyoshi) › What information is collected?

What information is collected?

Medical, physiotherapy and MRI/MRS assessments will be performed, according to your level of ability, on 6 occasions over 3 years. Each visit will likely last one entire day, possibly two.  Click on the pictures below for further description of the various tests.




 

 

 

Patient & Physician Resources

  • Resources Overview
  • Learning Center
  • Clinical Studies and Trials
    • Letter from Plavi Mittal
    • Studies/Trials for LGMD2B/Miyoshi Myopathy
    • Studies/Trials for Other Muscular Dystrophies
    • International Clinical Outcome Study for Dysferlinopathy (LGMD2B/Miyoshi)
      • Goals
      • Eligibility
      • Information Collected
      • Study Sites
      • Frequently Asked Questions
      • Contact Us
  • Patient Registration
  • Diagnostic Resources
  • LGMD Subtyping Diagnosis Tool
  • Physician Referrals
  • Patient Stories
  • Patient Community
  • Helpful Links

Secondary menu

  • Site Map
  • Disclaimer
  • Privacy Policy
  • Tool Sharing Network
  • Scientific Forum
Created by Website designed and developed by Stone Ward