Study Sites
The study is being conducted in 15 centers across the USA, Europe, Japan, and Australia.
Hover your mouse over the cities below to view the study site locations or see the complete list below.
UNITED STATES
Site Location |
Number of Participants
|
|
Washington University, School of Medicine St. Louis, MO
|
10 |
|
Nationwide Children’s Hospital Columbus, OH
|
25 |
|
Children’s National Medical Center Washington, DC
|
8 |
|
Carolinas Medical Center Charlotte, NC
|
15 |
|
Stanford Medical School Stanford, CA
|
5 |
JAPAN
Site Location |
Number of Participants
|
|
National Center of Neurology and Psychiatry Tokyo, Japan
|
13 |
AUSTRALIA
Site Location |
Number of Participants
|
|
The Children’s Hospital at Westmead Sydney, Australia +61 (0)2 9845 1328 |
6 |
EUROPE
Site Location |
Number of Participants
|
|
Institute of Genetic Medicine Newcastle upon Tyne, UK
|
38 |
|
Friedrich-Baur-Institut, Munich, Germany
|
10 |
|
Muscle Research Unit, Charité Berlin, Germany
|
4 |
|
CHU La Timone Marseille, France
|
10 |
|
Institut de Myologie Paris, France
|
12 |
|
Hospital Sant Pau Barcelona, Spain
|
14 |
|
Hospital Universitario Virgen del Rocío Sevilla, Spain
|
11 |
|
University of Padova Padova, Italy
|
17 |
Image of earth by NASA. Photo taken by either Harrison Schmitt or Ron Evans (of the Apollo 17 crew). Taken from Wikimedia Commons.
St. Louis, MO
Alan Pestronk
Columbus, OH
Jerry Mendell
Stanford, CA
John Day
Washington, DC
Diana Bharucha-Goebel
Charlotte, NC
Elena Bravver
Tokyo, Japan
Madoka Mori-Yoshimura
Sydney, Australia
Kristi Jones
Newcastle upon Tyne, UK
Kate Bushby
Munich, Germany
Maggie Walter
Berlin, Germany
Simone Spuler
Marseille, France
Emmanuelle Salort-Campana
Paris, France
Tanya Stojkovic
Barcelona, Spain
Jordi Díaz-Manera
Sevilla, Spain
Carmen Paradas
Padova, Italy
Elena Pegoraro
