Study Sites
The study is being conducted in 14 centers across the USA, Europe, Japan, and Australia. You do not need to live in the study center cities in order to participate and funds are available for participants and a helper, if necessary, to travel to the nearest study center.
Contact information for each study center will be posted below once the site is ready to begin recruiting patients. For more information or to determine eligibility, please email us at contact@dysferlinoutcomestudy.org or use the contact form.
Hover your mouse over the cities below to view the study site locations or see the complete list below.
UNITED STATES
Site Location |
Status |
Currently Enrolled
|
|
Washington University, School of Medicine St. Louis, MO 314-362-6981 #4
|
RECRUITING | 0 |
|
Nationwide Children’s Hospital Columbus, OH 614-722-6961
|
RECRUITING | 1 |
|
Children’s National Medical Center Washington, DC
|
NOT YET RECRUITING | 0 |
|
Carolinas Medical Center Charlotte, NC 704-333-3967 |
RECRUITING | 4 |
JAPAN
Site Location |
Status |
Currently Enrolled
|
|
National Center of Neurology and Psychiatry Tokyo, Japan +81 42 341 2711
|
RECRUITING | 4 |
AUSTRALIA
Site Location |
Status |
Currently Enrolled
|
|
The Children’s Hospital at Westmead Sydney, Australia
|
NOT YET RECRUITING | 0 |
EUROPE
Site Location |
Status |
Currently Enrolled
|
|
Institute of Genetic Medicine Newcastle upon Tyne, UK +44 (0) 191 241 8941
|
RECRUITING | 27 |
|
Friedrich-Baur-Institut, Munich, Germany +49 (0) 89 5160 7400
|
RECRUITING | 8 |
|
Muscle Research Unit, Charité Berlin, Germany +49 (0)30 450 540 504
|
RECRUITING | 1 |
|
CHU La Timone Marseille, France
|
NOT YET RECRUITING | 0 |
|
Institut de Myologie Paris, France
|
NOT YET RECRUITING | 0 |
|
Hospital Sant Pau Barcelona, Spain +34 93 556 5977
|
RECRUITING | 12 |
|
Hospital Universitario Virgen del Rocío Sevilla, Spain +34 95 592 3045
|
RECRUITING | 0 |
|
University of Padova Padova, Italy +39 049 821 3625 |
RECRUITING | 0 |
Image of earth by NASA. Photo taken by either Harrison Schmitt or Ron Evans (of the Apollo 17 crew). Taken from Wikimedia Commons.
St. Louis, MO
Matthew Harms
Columbus, OH
Jerry Mendell
Washington, DC
Carolina Tesi-Rocha
Charlotte, NC
Susan Sparks
Tokyo, Japan
Madoka Mori-Yoshimura
Sydney, Australia
Nigel Clarke
Newcastle upon Tyne, UK
Kate Bushby
Munich, Germany
Maggie Walter
Berlin, Germany
Simone Spuler
Marseille, France
Emmanuelle Salort-Campana
Paris, France
Tanya Stojkovic
Barcelona, Spain
Jordi Díaz-Manera
Sevilla, Spain
Carmen Paradas
Padova, Italy
Elena Pegoraro
