The Jain Foundation is a non-profit foundation whose mission is to cure muscular dystrophies caused by dysferlin protein deficiency, which includes the clinical presentations Limb-girdle muscular dystrophy type 2B (LGMD2B) and Miyoshi muscular dystrophy 1 (MMD1). The foundation is privately funded and does not solicit funding from patients or other sources.
The Foundation's focused strategy includes funding and actively monitoring the progress of scientific research projects in key pathways towards a cure, providing financial and logistical support to promising drug candidates to accelerate them to clinical trials, funding clinical trials and studies, encouraging collaboration among scientists, and educating LGMD2B/Miyoshi patients about their disease and helping them with their diagnosis (e.g., funding dysferlin protein and gene mutational analysis).
Please visit the pages below to learn more about the Jain Foundation:
The Jain Foundation's mission is to cure muscular dystrophies caused by dysferlin protein deficiency, which includes the clinical manifestations Limb-girdle muscular dystrophy type 2B (LGMD2B) and Miyoshi myopathy (MMD1).
We are a group of motivated, passionate and focused individuals with strong scientific backgrounds. All proposal reviews and funding decisions are carried out exclusively by this in-house team.
Description of the Jain Foundation's unique funding model and interactive approach to managing funded research projects.
Graphical representations of Jain Foundation research funding statistics over time.
Proposed metrics to measure the Jain Foundation's effectiveness and the scientific community's progress towards developing a therapy for dysferlinopathy.