Patient Stories

These patients have generously shared their stories of living with dysferlinopathy, including their initial symptoms, path to diagnosis, and disease progression. We hope that these personal accounts will serve as a source of information and inspiration for other dysferlinopathy patients and researchers searching for a cure for this disease.

• Allison's story
• Bathri's Story
• Becky's Story
• Bliss' Story
• Brad's Story
• Chanry's Story
• Chris' Story
• Dan's Story
• Isaac's Story
• Jennifer's Story
• John's Story
• Josh's Story
• Kurt's Story
• Lary's Story
• Marlen's Story
• Said's story
• Sharon's Story
• Steve's Story
• Tania's Story