ORCHESTRATING A CURE FOR DYSFERLINOPATHY

The Jain Foundation is singularly focused on finding a cure for dysferlinopathy, also referred to as LGMD2B, LGMDR2, Miyoshi Myopathy 1

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ORCHESTRATING
A CURE FOR
DYSFERLINOPATHY

The Jain Foundation is singularly focused on finding a cure for dysferlinopathy, also referred to as LGMD2B, LGMDR2, Miyoshi Myopathy 1

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WHAT IS DYSFERLINOPATHY?

LGMD2B/LGMDR2/MIYOSHI MYOPATHY 1

The Jain Foundation is exploring all avenues from the laboratory bench to bedside in the quest of identifying treatments for dysferlinopathy. Our innovative approach supports groundbreaking research, development of resources, diagnostic and educational programs, pre-clinical testing of promising treatments, and the development of tools needed to run successful clinical trials, such as a disease specific registry and outcome measures.

Through the collaborative effort of the many people involved in this effort, Jain Foundation staff, researchers, clinicians, patients, caregivers, regulatory agencies, and industry, we are driving real change for those with dysferlinopathy.

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ARE YOU INCLUDED IN THE DYSFERLIN REGISTRY?

The Jain Foundation curates a global registry of individuals who are genetically confirmed with dysferlinopathy, also referred to as LGMD2B, LGMDR2, Miyoshi Myopathy 1, which will help our community mobilize fast for clinical trials.

REGISTER TODAY

ARE YOU
INCLUDED IN THE
DYSFERLIN REGISTRY?

The Jain Foundation curates a global registry of individuals who are genetically confirmed with dysferlinopathy, also referred to as LGMD2B, LGMDR2, Miyoshi Myopathy 1, which will help our community mobilize fast for clinical trials.

REGISTER TODAY
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Travel Grant Program

The Jain Foundation is pleased to announce a new program covering travel expenses for researchers to present dysferlin-related research at scientific conferences.  Applicants can be principal investigators, postdoctoral fellows, or graduate students at non-profit institutions.  The work presented must be focused on dysferlin or dysferlinopathy but does not have to be funded by the Jain Foundation.  Grants can be up to $2000 for domestic travel and up to $3000 for international travel.

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Travel Grant Program

The Jain Foundation is pleased to announce a new program covering travel expenses for researchers to present dysferlin-related research at scientific conferences.  Applicants can be principal investigators, postdoctoral fellows, or graduate students at non-profit institutions.  The work presented must be focused on dysferlin or dysferlinopathy but does not have to be funded by the Jain Foundation.  Grants can be up to $2000 for domestic travel and up to $3000 for international travel.

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MAKING AN IMPACT

FUNDING MISSION CRITICAL PROGRAMS

120+

We carefully select and monitor research projects, studies and other programs to advance our mission

INVESTING
IN THE CURE

$35+M

Over 35 million dollars invested in research, drug development and patient support and education

WORKING TOWARDS
THE FUTURE

COS

Our Clinical Outcome Study (COS) provides critical information for the successful design of clinical trials

PREPARING THE COMMUNITY FOR TRIALS

900+

We have identified over 900 genetically confirmed individuals with dysferlinopathy worldwide

MAKING AN IMPACT

FUNDING MISSION
CRITICAL PROGRAMS

120+

We carefully select and monitor research projects, studies and other programs to advance our mission

INVESTING
IN THE CURE

$35+M

Over 35 million dollars invested in research, drug development and patient support and education

WORKING TOWARDS
THE FUTURE

COS

Our Clinical Outcome Study (COS) provides critical information for the successful design of clinical trials

PREPARING THE COMMUNITY FOR TRIALS

900+

We have identified over 900 genetically confirmed individuals with dysferlinopathy worldwide

MAKING AN IMPACT

FUNDING MISSION CRITICAL PROGRAMS

120+

We carefully select and monitor research projects, studies and other programs to advance our mission

INVESTING
IN THE CURE

$35+M

Over 35 million dollars invested in research, drug development and patient support and education

WORKING TOWARDS
THE FUTURE

COS

Our Clinical Outcome Study (COS) provides critical information for the successful design of clinical trials

PREPARING THE COMMUNITY FOR TRIALS

900+

We have identified over 900 genetically confirmed individuals with dysferlinopathy worldwide