ACCESS RESOURCES

Study Recruitment

ACCESS RESOURCES

Study Recruitment

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Study Recruitment

Resources available through the Dysferlin Registry include:

  • Genetic, protein, and clinical information
  • Engaged patient community
  • Dissemination of information
  • Recruitment support
The many faces of dysferlinopathy

The Jain Foundation curates the Dysferlin Registry, an international patient registry of 800+ genetically confirmed dysferlinopathy patients.

For help recruiting for your research study, survey, clinical trial or access to other resources available through the Dysferlin Registry, contact us at patients@jain-foundation.org.