Find a Clinician

THE DYSFERLINOPATHY JOURNEY

THE DYSFERLINOPATHY JOURNEY

Find a Clinician

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Find a Clinician

Looking for a neurologist or other expert who is familiar with limb girdle muscular dystrophy (LGMD) sub-types? Below is a list of neurologists and other clinicians who are knowledgeable about LGMDs and diagnosing them. This list will be updated as more clinicians are identified.

United States of America

Other Countries

Alabama

Christopher LaGanke MD

Founder North Central Neurology Associates, PC
1809 Kress Street
Cullman, AL 35058
Tel: (1) 256-739-1210
Web: http://www.northcentralneurology.com/our-providers

Clover Genetics – Genetic Counseling

Provides telehealth genetic counseling services to multiple states

Genetic Counselors:

Andrew McCarthy, MS, CGC, Founder and CEO of Clover Genetics

Tel: (1) 412-440-8645
Email: info@clovergenetics.com
https://clovergenetics.com/

David G. Standaert, M.D., Ph.D.

Principal Investigator, UAB Center for Neurodegeneration and Experimental Therapeutics
John N. Whitaker Chair, Department of Neurology
Director of the UAB Division of Movement Disorders
UAB Neurology Clinic in Neurosciences 2
The Kirklin Clinic of UAB Hospital
2000 6th Ave S, Fl 2
Birmingham, AL 35233
Tel: (1) 205-801-8986

Alaska

Clover Genetics – Genetic Counseling

Provides telehealth Genetic Counseling Services to multiple states
Genetic Counselors:
Andrew McCarthy, MS, CGC, Founder and CEO of Clover Genetics
Hannah Krammes, MS, CGC
Jennifer Carroll, LCGC
Tel: (1) 412-440-8645
Email: info@clovergenetics.com
https://clovergenetics.com/

Arizona

Saunder Bernes, MD

Neurologist, Phoenix Children’s Hospital
1919 E. Thomas Rd.
Phoenix, AZ 85106
Tel: (1) 602-933-0970

Clover Genetics – Genetic Counseling

Provides telehealth genetic counseling services to multiple states
Genetic Counselors:
Andrew McCarthy, MS, CGC, Founder and CEO of Clover Genetics
Hannah Krammes, MS, CGC
Jennifer Carroll, LCGC
Tel: (1) 412-440-8645
Email: info@clovergenetics.com
https://clovergenetics.com/

Holli Horak, MD

Specialties: ALS, muscular dystrophy, autoimmune neuropathies and myasthenia gravis
Neuromuscular specialist
Director Neurophysiology Fellowship
College of Medicine Tuscon
Department of Neurology
3838 N Campbell Ave
Bldg 2, Clinic E
Tuscon, AZ 85719
Tel: (1) 520-694-8888

Kerry Knievel, DO

Assistant Professor of Neurology
Director of Inpatient Neurology Service
Director of Headache Program
Clinical Assistant Professor of Neurology, University of Arizona College of Medicine Phoenix
Affiliate Faculty Clinical Assistant Professor of Neurology, Creighton University of School of Medicine
Barrow Neurological Institute
240 West Thomas Road Suite #400
Phoenix, AZ 85013
Tel: (1) 844-285-7970
Website: https://www.barrowneuro.org/

Shafeeq S. Ladha, MD

Associate Professor of Neurology
Ira A. and Mary Lou Fulton Chair in Motor Neuron Diseases
Director of Gregory W. Fulton ALS and Neuromuscular Disorders Center
Director of Muscular Dystrophy Center
Medical Director of Neuroinfusion Suite
Associate Professor of Neurology, University of Arizona, College of Medicine Phoenix
Associate Clinical Professor of Neurology, Creighton University School of Medicine
Barrow Neurological Institute
240 West Thomas Road Suite #400
Phoenix, AZ 85013
Tel: (1) 844-285-7970
Contact: Erin Reisner Erin.reiser@dignityhealth.org
Website: https://www.barrowneuro.org/get-to-know-barrow/person/shafeeq-ladha-md

Erik L. Ortega, MD

Associate Professor of Neurology
Medical Director Barrow Neurology Clinics
Medical Director of Electroneurodiagnostics Lab (Neuromuscular)
Director of Neuromuscular Fellowship
Affiliate Faculty Assistant Professor of Neurology, Creighton University School of Medicine
Barrow Neurological Institute
240 West Thomas Road Suite #400
Phoenix, AZ 85013
Tel: (1) 844-722-5216
Contact: Erin Reisner Erin.reiser@dignityhealth.org
Website: https://www.barrowneuro.org/

Katalin Scherer, MD

Associate Professor of Neurology
Director, MDA-ALS Center
MDA and Neuromuscular Clinics, University of Arizona
1501 N. Campbell Avenue
Tucson, AZ 85724-5023
Tel: (1) 5206948888
Email: kscherer@neurology.arizona.edu
Facebook/Email: katalin.scherer@facebook.com

Swaraj Singh, MD

Neurologist, AZ Integrated Neuro Spine & Pain
9305 W Thomas Rd, Ste 250
Phoenix, AZ 85037
Tel: (+1) 623-322-5700

Arkansas

Thomas A Burrow, M.D.

Focus: Medical Genetics
Arkansas Children’s Hospital
1 Children’s Way
Little Rock, AR 72202
Tel: (1) 501-364-2966
Fax: (1) 501-364-1564

California

William S Baek, MD, FAAN

Member of AANEM, ABDA
Emanate Health
1310 San Bernardino Rd Suite 102
Upland, CA 91786
Tel: (1) 909 608 2008

Linda Chen, MD

Sansum Clinic Neurology
317 W Pueblo St
Neurology 2nd floor
Santa Barbara, CA 98105
Tel: (1) 805-898-3240

Clover Genetics – Genetic Counseling

Provides telehealth genetic counseling services to multiple states
Genetic Counselors:
Andrew McCarthy, MS, CGC, Founder and CEO of Clover Genetics
Jennifer Carroll, LCGC
Tel: (1) 412-440-8645
Email: info@clovergenetics.com
https://clovergenetics.com/

Vinh Quang Dang, MD

Focus: Neurology
Kaiser Permanente
Fontana Medical Center, Neurology Dept
9961 Sierra Ave
Fontana, CA 92335
Tel: (1) 909-609-3200

Leila Darki, MD

Focus: Neurology, Neuromuscular Disorders

Keck School of Medicine, USC
1520 San Pablo St, Ste 3000
Los Angeles, CA 90033

Tel: (+1) 323-442-5710
darki@usc.edu

John Day, MD, PhD

Focus: ALS, Ataxia, Muscular Dystrophy, Myasthenia Gravis
Professor, Neurology and Neurological Sciences
Director, Stanford Neuromuscular Program
Department of Neurology & Neurological Sciences
Division of Neuromuscular Medicine
Neuromuscular Program at the Neuroscience Health Center
213 Quarry Road, 1st floor
Palo Alto, CA 94304
Tel: (1) 650-723-6469
Email: jnfisher@stanford.edu (contact Jennifer Fisher – Neuromuscular Community Outreach Liaison)
Neuromuscular Program at Stanford Hospital and Clinics:
https://stanfordhealthcare.org/medical-clinics/neuromuscular-program.html

Amanda Fernandez MD

Assistant Clinical Professor, University of California, Irvine, School of Medicine
Pediatric Neurologist,Children’s Hospital of Orange County (CHOC)
1201 W La Veta Ave
Orange, CA 92868
Tel: (1) 714-509-7601

Karen R. Garnaas

Neurologist
Catalyst Neuromedical Center
3305 Placer St
Redding, CA 96001
Tel: (1) 530-999-2533

Namita A. Goyal, MD

Associate Professor of Neurology
Associate Director, UC Irvine MDA Clinics
Director, Neuromuscular Fellowship Program
Department of Neurology
UCI Health ALS & Neuromuscular Center
200 S. Manchester Avenue, Ste. 110
Orange, CA 92868
Tel: (714) 456-2332; Fax: (714) 456-5997
Email: namitag@uci.edu

Pouya Lavian MD

Pouya Lavian MD Inc.
5363 Balboa Blvd, Ste 242
Encino, CA 91316
Tel: (1) 818-394-0884

Tahseen Mozaffar, MD

Associate Professor Neurology & Orthopaedic Surgery
Director, UC Irvine Neuromuscular Program
200 S. Manchester Avenue, Suite 110
Orange, CA 92868-4280, USA
Tel: (1) 7144562332 (Denise)
Email: mozaffar@uci.edu
Website: www.healthcare.uci.edu/als

Tyler Mark Pierson, MD, PhD
Assistant Professor, Neurology; Assistant Professor, Pediatrics. Focus: rare neurogenetic disorders diagnosis
Cedars Sinai Medical Center
Pediatric Neurology
8723 Alden Dr., #240
Los Angeles, CA 90048
Phone: 1-310-423-4441

Jeffrey Rosenfeld, PhD., MD, FAAN

Specialties: Neurology, Neuromuscular Medicine
Professor of Neurology
Associate Chairman, Dept of Neurology
Director, Neuromuscular ALS/MND Program
Medical Director, The Center for Restorative Neurology
Loma Linda University School of Medicine
11370 Anderson St, #B100
Loma Linda, CA 92354
Tel: (1) 909 558 2880

Amir H. Sabouri MD, PhD

The Permanente Medical Group
Walnut Creek Medical Center
1515 Newell Ave
Walnut Creek, CA 94596
Tel: (1) 925-295-6953

Karim Shahnawaz, MD

Neurologist, Kaiser Permanente
South Sacramento Medical Center
6600 Bruceville Road
Sacramento, CA 95823
Tel (1+) 916-688-2050

Perry Shieh, MD PhD

Professor, Department of Neurology, David Geffen School of Medicine at UCLA with focus on Neurology – Neuromuscular – muscle diseases
University of California, Los Angeles
UCLA Health, Neurological Services
Westwood Neurology
300 Medical Plaza, Suite B-200
Los Angeles, CA 90095
Tel: 1-310-794-1195
Email: pshieh@mednet.ucla.edu

Richard Lewis, MD

Cedars-Sinai Multidisciplinary Clinic

127 S San Vicente Blvd, A6600,
Los Angeles, CA, 90048

Tel: (1) 310-423-5700
Website: https://www.cedars-sinai.org/programs/neurology-neurosurgery/clinical/nerve-muscle-als/experts.html

Vivien Triano, MS, LCGC

Genetic Counselor, Division of Genomic Medicine, Department of Pediatrics
Kaiser Permanente – Sacramento
Sacramento Medical Center
1650 Response Road
Sacramento, CA 95815
Tel: (1) 916-614-4075

Sharon Yegiaian MD

Neurologist, Pasadena Center for Neuromuscular Medicine
139 S. Los Robles, Ste B20
Pasadena, CA 91101
Tel: (1) 626-626-7670
Fax: (1) 626-818-4151

Colorado

Clover Genetics – Genetic Counseling

Simon Oh MD

Colorado Neurology Center
1400 S. Potomac St., Ste 220
Aurora, CO 80012
Tel: (1) 720-248-5200

Matthew Wicklund, MD

Professor of Neurology
Colorado Univ, Anschutz Medical Campus
UC Health Neurosciences Center
1635 Aurora Ct., 4th fl.
Aurora, CO, 80045
Tel: (1) 720-848-2080

Connecticut

Jason S Wong MD

Neurologist
Stamford Health Medical Group Neurology
29 Hospital Plaza, Ste 602
Stamford, CT 06902
Tel: (1) 203-276-4464

Florida

Olimpia Carbunar MD, MS

Neurology specialist, General Neurology and Neuromuscular Division
University of Miami, Miller School of Medicine
1150 NW 14st, Suite 609
Miami, FL 33136
Tel: (1+) 305-243-6732

Clover Genetics – Genetic Counseling

Provides telehealth genetic counseling services to multiple states
Genetic Counselors:
Andrew McCarthy, MS, CGC, Founder and CEO of Clover Genetics
Tel: (1) 412-440-8645
Email: info@clovergenetics.com
https://clovergenetics.com/

Aditi I. Dagli, MD

Geneticist specializing in pediatric genetics

Orlando Health Arnold Palmer Hospital for Children
Division of Genetics
60 W Gore St, 2nd Fl
Orlando, FL 32806
Tel: (1) 407-648-7802

Elliot Dimberg, MD

Focus: Neurology, Neuromuscular Disorders, Myopathies, Peripheral neuropathies
Mayo Clinic FL
4500 San Pablo Rd S, Ste 2E
Jacksonville, FL 32224
Tel: (1) 904-953-6915

Michael Franklin, MD

BayCare Medical Group
Saint Anthony’s Neurology Group
1201 5th Ave N, Ste 202
St Petersburg, FL 33705
Tel: (1) 727-820-7701

Jose Gaudier, MD

Former president of the Marion County Medical Society
Neurologist
Jose A. Gaudier Neurology
1740 SE 18th St, Suite 1202
Ocala, FL 34471
Tel: (1) 352-732-8630

Dominika Lozowska, MD

Baptist Neurology Group

841 Prudential Dr, 10th Fl

Jacksonville, FL 32207

Tel: (1) 904-398-5404

Migvis Monduy, MD

Medical Director, Neuromuscular and Movement Disorders Programs, Nicklaus Children’s Hospital

Areas of focus: Pediatric Neurology, Pediatric Neuromuscular

Nicklaus Children’s Hospital

3200 SW 60th Court, Suite 302
Miami FL 33155

Tel: (1) 305-662-8330

Bjorn Oskarsson, MD

Associate Professor of Neurology, Jacksonville
Director ALS Center of Excellence
Mayo Clinic
4500 San Pablo Road
Jacksonville, FL 32224
www.mayoclinic.org
Tel (secretary): (1) 904-953-2903
Email: oskarsson.bjorn@mayo.edu

Guillermo Philipps, MD

Pediatric Neurology
Lee Physician Group, Pediatric Specialists – Pt Charlotte
22655 Bayshore Rd, Ste 130
Port Charlotte, FL, 33980
Tel: (1) 941-235-4900

Michael Pulley, MD PhD

Focus: Clinical Neurophysiology, Multiple Sclerosis, Neurology and Neuromuscular Medicine
Associate Professor, Dept of Neurology
University of Florida Health Neurology – Jacksonville
9th Floor, Tower 1
580 W. 8th St.
Jacksonville, FL 32209
Tel: (1) 904-383-1022

Jaimin Shah, MD

Director, MDA Care Center

Neurology, Neuromuscular disease, Myopathies and ALS
Mayo Clinic
4500 San Pablo Road
Jacksonville, FL 32224
www.mayoclinic.org
Email: Shah.Jaimin@mayo.edu

Khema Sharma, MD

UHealth, MDA/ALS Center
Professional Arts Center
1150 NW 14th St, Suite 609

Miami, FL 33136
Tel: (1) 305-243-6732

Ashok Verma, MD

Director, Kessenich Family MDA-ALS Center and MDA Clinics
Professor of Clinical Neurology
University of Miami Health System
Professional Arts Center
1150 NW 14th St, Suite 609
Miami, FL 33136
Tel: (1) 305-243-6732
Web: http://uhealthsystem.com/doctors/profile/1310

Roman Yusupov, MD

Pediatric Genetics
Joe DiMaggio Children’s Hospital
1131 N 35th Ave, 2nd fl.
Hollywood, FL, 33021
Tel: (1) 954-265-6319

Georgia

Clover Genetics – Genetic Counseling

Stephen N. Donahue, MD

Savannah Neurology Specialists
6602 Waters Avenue, Building C
Savannah, GA 31406
Tel: (1) 912-354-7676

Thomas Holmes, MD

Wellstar Neurology
780 Canton Road NE, Ste 400
Marieta, GA 30060
Tel: (1) 770-422-3602

Vita Kesner, MD

Director of the Electromyography (EMG) Laboratory and The Peripheral Nerve Clinic
Emory Brain Health Center
12 Executive Park Dr NE, Fl 5
Atlanta, GA 30329
Tel: (1) 404-778-3444

Neil Lava, MD

Neurology Specialist, Emory University School of Medicine
Emory Brain Health Center
12 Executive Park Dr. NE, Fl 5
Atlanta, GA 30329
Tel: (1) 404-778-3444
Fax: (1) 404-712-7464

Michael H. Rivner, MD

Neurologist – August University
Augusta University Medical Office Bldg
1447 Harper St
Augusta, GA 30912

Tel: (1) 706-721-2273

Saila Upadhyayula, MD

Neurology Specialist, Emory University School of Medicine
Emory Brain Health Center
12 Executive Park Dr NE, #511
Atlanta, GA 30329
Tel: (+1) 404-778-3444

Hawaii

Clover Genetics – Genetic Counseling

Jayson Takata, MD

Physiatrist
1329 Lusitana Street, Ste 805
Honolulu, HI 96813
Tel: (1) 808-538-7700

Illinois

Senda Ajroud-Driss, MD

Neurologist, Northwestern Medicine
259 E Erie St, #1900
Chicago, IL 60611
Tel: (+1) 312-695-7950

Clover Genetics – Genetic Counseling

Michael L Cullen MD

Neurologist
The Center for Neurosciences
4326 7th St
Moline, IL 61265
Tel: (1) 309-797-6611

Lenika De Simone, MS, CGC

Genetic Counselor
Lurie Children’s Hospital of Chicago
225 E Chicago Ave
Chicago, IL 60611
Tel: (1) 800-543-7362

Elizabeth Flaherty, MD

Focus: Internal Medicine, Neurology
Northwest Neurology
1710 N Randall Rd, #250
Elgin, IL 60123
Tel: (1) 847-882-6604

James M Gilchrist, MD

Springfield Memorial Hospital

701 N First St, Ste 3100

Springfield, IL 62781

Tel: (1) 217-545-8000

Mohamed Ghumra, MD

Duly Health and Care
750 Fletcher Drive, Suite 204
Elgin, IL 60123
Tel: (1) 847-931-4626

Raghav Govindarajan, MD, FAAN, FANA, FACP

Neurology specialist, HSHS Medical Group
3 St. Elizabeth Blvd
Ste 5000
O Fallon, IL, 62269
Tel: (1) 217-717-3757

Ryan Jacobson, MD

Specialist in neuromuscular disorders
Rush Neurology – Neuromuscular
1725 W Harrison St
Chicago, IL 60612
Tel: (1) 312-942-4500

Octavia Kincaid, MD

Rush University Medical Group
1520 W Harrison St.
Joan and Paul Rubschlager Building, 7th Fl
Chicago, IL 60607
Tel: (1) 312-942-4500

Lisa M Kinsley, MS, CGC

Senior Genetic Counselor
Neurology Department
Northwestern University Feinberg School of Medicine
259 E Erie, 19^th Floor
Chicago, IL 60611
Tel: (1) 312-695-7950
Email: l-kinsley@northwestern.edu
Website: northwesternmedicine.org

Nancy L. Kuntz, MD

Associate Professor of Pediatrics, Feinberg School of Medicine, Northwestern University
Attending Pediatric Neurologist
Medical Director, Mazza Foundation Neuromuscular Program
Department of Pediatrics
Division of Neurology
MDA and PPMD CDCC clinic
Ann & Robert H. Lurie Children’s Hospital of Chicago
225 East Chicago Avenue, Mailbox 51
Chicago, IL 60611
Tel: (1) 312-227-3550
Email: kalianello@luriechildrens.org (contact Kristen Alianello, Neuromuscular Nurse Coordinator)
Neuromuscular Program at Lurie Children’s Hospital
https://www.luriechildrens.org/en/specialties-conditions/neuromuscular-disorders-program/

Elizabeth McNally, MD, PhD

Elizabeth J Ward Professor and Director
Center for Genetic Medicine
Northwestern University Feinberg School of Medicine
303 E. Superior St. Lurie 7-123
Chicago, IL 60611
T: 312 503 5600
elizabeth.mcnally@northwestern.edu
https://labs.feinberg.northwestern.edu/mcnally/

Daniel Orozco, MD

Swedish Medical Group
6450 W Touhy Ave
Niles, IL 60646
Tel: (1) 773-631-2223

Kenneth Silver MD

Pediatric neurologist at Shriners Hospitals for Children, Chicago
Co-director of the muscular dystrophy MDA-affiliated clinic
Shriners Hospitals for Children
2211 N. Oak Park Ave
Chicago, IL 60707
Tel: (1) 773-622-5400

Jacob Tony, MD

Carle Health Methodist Atrium Medical Office Center
900 Main Street, Ste 250
Peoria, IL 61602
Tel: (1) 309-672-4522

Indiana

Clover Genetics – Genetic Counseling

Kristi George MD

JWM Neurology
7250 Clearvista Dr. STE 225
Indianapolis, IN 46256
Tel: (1) 317-537-6088

Larry Salberg, MD

Board certified in neurology by the American Board of Psychiatry and Neurology (ABPN) with added qualification in clinical neurophysiology
Director of the Sleep Center at The Neurological Institute and Specialty Centers
The Neurological Institute
521 E. 86th Avenue. Ste Z
Merrillville, IN 46410
Tel: (1) 219-769-0777

Laurence Walsh, MD

Rilely Pediatric Neurology, IU Health
575 Riley Hospital Drive
Indianapolis, IN 46202
Tel: (1) 317-948-7450

https://www.rileychildrens.org/find-a-doctor/physician/laurence-e-walsh

Iowa

Mohammad Alsharabati, MD

Focus: Electrodiagnostics (NCS/EMG), Neurology, Neuromuscular Disorders, Neuropathy
UnityPoint Health – DesMoines Neurology – Lakeview
6000 University Ave, Ste 210
West Des Moines, IA 50266
Tel: (1) 515-241-2080

Shereen Chang, MD

Physicians’ Clinic of Iowa
PCI Medical Pavilion 2
275 10th St SE
Cedar Rapids, IA 52403
Tel: (1) 319-398-1721

Irena Charysz-Birski

Genesis Health Group, Neurology
4700 E 56th St, Ste 100
Davenport, IA 52804
Tel: (1) 563-383-2667

Katherine Mathews, MD

Director, Division of Pediatric Neurology
University of Iowa Carver College of Medicine
University of Iowa Children’s Hospital
200 Hawkins Drive
Iowa City, Iowa 52242, USA
Tel: (1) 3193561851
Email: Katherine-mathews@uiowa.edu
Website: http://www.uihealthcare.com/depts/med/pediatrics/pedsmds/mathews.html

Rodney Short, MD

Neurologist
MercyOne Genesis Neurology Care
1351 W Central Park Ave
Pavilion 1, Ste 340
Davenport, IA 52804
Tel: (1) 563-421-2320

Kansas

Clover Genetics – Genetic Counseling

Kendra Engleman, MS, CGC

Certified Genetic Counselor, Division of Genetics, Children’s Mercy Kansas City
2401 Gillham Road
Kansas City, MO 64108
Tel: (+1) 816-302-3290
Email: klengleman@cmh.edu

Jeffrey M Statland

Focus: FSHD and neuromuscular diseases
Professor of neurology
University of Kansas Medical Center
3599 Rainbow Blvd
Landon Center
Kansas City, KS 66160
Tel: (1) 913-588-5298

Kentucky

Martin E. Brown, MD

Focus: Muscular Dystrophy/Inherited Myopathies | Motor Neuron Disease | Myositis/Acquired Myopathies | Myasthenia Gravis/Neuromuscular Junction Disorders
University of Louisville Physicians – Neurology
401 E Chestnut St Unit 510
Louisville, KY 40241
Tel: (1) 502-588-4800

Clover Genetics – Genetic Counseling

Louisiana

Rima El-Abassi MD

LCMC Health
478 S Johnson St, 5th Fl
New Orleans, LA 70112
Tel: (1) 504-412-1517

Edward Haight, MD

SE Neuroscience Center
128 Neuroscience Ct
Gray, LA 70359
Tel: (1) 985-917-3007

Kallie Holt, ARPN

Nurse Practitioner
Family Health Partners
1808 Hwy 190 W, Suite C2
DeRidder, LA 70634
Tel: (1) 337-348-0031

Maine

Clover Genetics – Genetic Counseling

Maryland

Vinay Chaudhry, MD, MBBS

Director EMG Laboratory, Director Neurology Outpatient Clinic, Professor of Neurology,
Johns Hopkins Medicine
601 N Caroline St
Baltimore, MD 21287
Tel: (+1) 410-464-6641

Clover Genetics – Genetic Counseling

Andrew L Mammen, MD, PhD

Neurologist with focus on neuromuscular medicine
Johns Hopkins Bayview Medical Center
4940 Eastern Avenue, Suite 1201
Baltimore, MD 21224
Tel: (1) 410-550-5624

Massachusetts

Anthony A. Amato, MD

Vice-Chairman, Dept. of Neurology
Brigham and Women’s Hospital
60 Fenwood Rd, 1st Fl
Boston, MA 02115, USA
Tel: (1) 617-732-7432

https://physiciandirectory.brighamandwomens.org/details/700/anthony-amato-neurology-boston

Robert H. Brown, MD

Chair and Professor, Neurology University of Massachusetts
55 Lake Avenue N
Worcester, MA 01655, USA
Tel: (1) 508-334-2527
Email: Robert.Brown@umassmed.edu

Ahmet Burakgazi, MD

Neurologist

Southcoast Health

235 Hanover St. #2

Fall River, MA 02720

Tel: (1) 508-973-7782

Clover Genetics – Genetic Counseling

Paloma Gonzalez Perez, MD, PhD

Neuromuscular Neurologist
Massachusetts General Neurology: Neuromuscular
165 Cambridge Street
Charles River Plaza, Ste 820
Boston, MA 02114
Tel: 617-726-3642

Nathaniel Robbins, MD

Mass General Brigham
Neurology Associates
15 Parkman St
Boston, MA 02114
Tel: (1) 617-724-3914

Michigan

Margaret Frey, DO

Memorial Neurological Institute & Center for Multiple Sclerosis
819 N Shiawassee St
Owosso, MI 49503
Tel: (1) 517-432-9277
Email: margaret.frey@hc.msu.edu

Andrew Mundwiler, MD

Focus: Neuromuscular disorders, autoimmune neuropathy, myasthenia gravis, ALS, and muscle disease
Spectrum Health Neuroscience Department
2750 East Beltline Ave NE
Grand Rapids, MI 49525
Tel: (1) 616-267-7104
Website: https://www.spectrumhealth.org/patient-care/neurosciences

Daniel S. Newman, MD

Focus: Neurodegenerative Diseases
Henry Ford Hospital
2799 West Grand Blvd.
Detroit, MI 48202
Tel: (1) 313-916-2594

Laura Bedinger, MS, CGC

Spectrum Health Medical Genetics
25 Michigan St. NE, Ste 2000
Grand Rapids, MI 49503
Tel: (1) 616-267-2503

Melanie Taylor, MD

Medical Director of Mercy Health Hauenstein Neurosciences Neuromuscular Program
Clinic director for both the ALS and MDA clinics at Mercy Health
Trinity Health Neurosciences
220 Cherry St SE, Hauenstein 1
Grand Rapids, MI 49503
Tel: (1) 616-685-5050

Minnesota

Clover Genetics – Genetic Counseling

Lisa Davidson, MD

Mankato Neurology Department
1230 East Main Street
Mankato, MN 56001
Tel: (1) 507-389-8568

Peter Kang, MD, FAAN, FAAP

Director, Paul & Sheila Wellstone Muscular Dystrophy Center
Professor and Vice Chair of Research, Department of Neurology
Scholar, Institute for Translational Neuroscience
M Health Fairview Explorer Pediatric Specialty Clinic
2450 Riverside Ave
Minneapolis, MN 55455
Tel: (1) 612-365-6777
Email: pkang@umn.edu

Teerin Liewluck, MD, FAAN , FANA

Consultant, Division of Neuromuscular Medicine and Muscle Pathology Laboratory, Department of Neurology
Associate Professor of Neurology, Mayo Clinic College of Medicine
Mayo Clinic
200 First Street SW
Rochester, MN 55905
Tel: (1) 507-284-1588

Adam Loavenbruck, MD, MS

Director of the HCMC EMG laboratory and neuromuscular division
Co-director of the HCMC Neuromuscular Laboratory
Hennepin County MC, Neuromuscluar Clinic
715 South 8th Street
Minneapolis, MN 55404
Tel: 612-873-6963

Georgios Manousakis, MD

Department of Neurology
University of Minnesota
M Health Fairview Clinics and Surgery Center
909 Fulton St SE
Minneapolis, MN 55455
Tel (1) 612-273-8383

Email: gmanousa@umn.edu

Margherita Milone, MD, PhD

Professor of Neurology
Director, Neuromuscular Medicine Fellowship Program
Director, Muscle Pathology Laboratory
Director, MDA Care Center
Mayo Clinic
200 First Street SW
Rochester, MN 55905
Tel: (1) 507-284-1588

Randal Richardson, MD

Gillette Children’s Specialty Healthcare
200 University Ave E
St. Paul, MN 55101
and
Gillette Lifetime Specialty Healthcare
435 Phalen Blvd
St. Paul, MN 55130
Tel: (1) 651-578-5031

Kali Schreiner, MS, CGC (she/her)

Licensed, Certified Genetic Counselor
Gillette Children’s
200 University Avenue E.
St. Paul, MN 55101
Tel: (1) 651-228-6426

Mississippi

Clover Genetics – Genetic Counseling

Lamar Davis MD

University of Mississippi Medical Center
Dept of Pediatric Neurology
2500 North State Street
Jackson, MS 39216
Tel: (1) 888-815-2005

Missouri

Robert Bucelli, MD, PhD

Professor of Neurology, Neuromuscular Section, Barnes-Jewish Hospital and Washington University
WA University School of Med St. Louis
Center for Advanced Medicine Neuroscience Center
4921 Parkview Pl, Suite C, Fl 6
St. Louis, MO 63110
Tel: (+1) 314-623-9381
email: als@wustl.edu

Clover Genetics – Genetic Counseling

Kendra Engleman, MS, CGC

Certified Genetic Counselor, Division of Genetics, Children’s Mercy Kansas City
2401 Gillham Road
Kansas City, MO 64108
Tel: (+1) 816-302-3290
Email: klengleman@cmh.edu

Erik R Ensrud, MD

Neurologist, U of Missouri-Columbia (MU)
School of Medicine
1020 Hitt St
Columbia, MO
Tel: (1) 573-882-1515
https://www.muhealth.org/doctors/erik-ensrud-md#academics

Jafar Kafaie

Focus: Neurology, Electrodiagnostic Medicine, Neuromuscular Medicine
SLUCare Physician Group
Center for Specialized Medicine
1225 S Grand Blvd.
Saint Louis, MO 63104
Tel: (1) 314-617-2555

Alan Pestronk, MD

Professor, Departments of Neurology and Pathology and Immunology
Director, Neuromuscular Division
Director, Neuromuscular Clinical Laboratory
Washington University – St. Louis
660 South Euclid Avenue
St. Louis, MO 63110, USA
Tel: (1) 314-362-6981
E-mail: pestronka@neuro.wustl.edu
Website: http://neuromuscular.wustl.edu

Charles D. Roach, MD

Neurologist with focus on neuromuscular medicine
Barnes-Jewish Hospital affiliation

Washington University Physicians
4921 Parkview Pl, Ste 6C
Saint Louis, MO 63110
Tel: (1) 314-747-1005

Conrad Weihl, MD, PhD

Neurologist, Washington University Physicians
Center for Advanced Medicine, Neuroscience Center
4921 Parkview Pl
St. Louis, MO 63110
Tel: (1) 314-362-6981

Montana

Clover Genetics – Genetic Counseling

Nebraska

Yu-Ting Chen, MD

Focus: Neuromuscular medicine
Assistant Professor, Dept of Neurology, Creighton University
CHI Health Clinic – Neurological
6901 N 72nd Street, Suite 2400
Omaha, NE 68122
Tel: (+1) 402-717-0070
Email: yu-ting.chen@commonspirit.org

Clover Genetics – Genetic Counseling

Nevada

Clover Genetics – Genetic Counseling

Johnathan McKinnon, MD

Neurology specialist, Las Vegas Clinic
2400 Cimarron Rd, Ste 120
Las Vegas, NV 89117
Tel: (+1) 702-505-4230
Fax: (+1) 702-505-4231

New Hampshire

Jason B Fleming, MD

Specializes: Neuromuscular disorders
Elliot Hospital Neurology Associates
185 Queen City Ave
Manchester, NH 03101
Tel: (1) 603-663-4800

John Rescigno, MD

Neurologist
Derry Neurological Associates
Overlook Medical Park, Suite 302
6 Tsienneto Road
Derry, NH 03038
Tel: (1) 603-434-3525

Victoria H. Lawson, MD, MSc
Associate Professor and Section Chief of Neurology, Dartmouth Geisel School of Medicine
Dartmouth-Hitchcock Medical Center
One Medical Center Drive
Lebanon, NH 03756
Tel: (1) 603-650-5104

Email: Victoria.H.Lawson@hitchcock.org

New Jersey

Clover Genetics – Genetic Counseling

Christina Flora, LGC

Genetic Counselor, Atlantic Health Systems
Comprehensive Treatment Center
101 Madision Avenue, Suite 201
Morristown, NJ 07960
Tel: (+1) 973-971-7634

Andre Hu, MD

Physical Medicine & Rehabilitation, Pain Management
Synergy Joint & Spine
525 Route 73, Suite 300
Marlton, NJ 08053
Tel (1) 856-267-5319

Megan M Leitch, MD

Atlantic Neuroscience Associates
99 Beauvoir Ave, Fl 5
Summit, NJ 07901
Tel: (1) 908-522-2829

New Mexico

Meeta Cardon, MD

Assistant Professor of Neurology in the Division of Child Neurology at the University of New Mexico
University of New Mexico Health Sciences, Division of Child Neurology
2500 Marble Ave
Albuquerque, NM 87106
Tel: (1) 505-272-2111

New York

Yaacov Anziska, MD

Associate Professor of Neurology
Director, Muscular Dystrophy Clinic
SUNY Downstate Medical Center
450 Clarkson Ave, Box 1213
Brooklyn, NY 11203-2098, USA
Tel: (1) 718-270-2430
Email: yanziska@downstate.edu
Website: https://www.downstate.edu/faculty/neurology/neuromuscular/anziska.html

Clover Genetics – Genetic Counseling

Jaya Ganesh, MD

Focus: Inborn errors of metabolism, mitrochondrial diseases, lysosomal storage diseases, genetic disease
Associate Professor, Dept of Genetics and Genomic Sciences
Pediatric Geneticist
Icahn School of Medicine, Mt. Sinai
1428 Madison Ave
New York, NY 10029
Tel: (1) 212-241-0915

Matthew Harms, MD

Assistant Professor of Neurology, Columbia University, Neurological Institute of NY
710 W 168th St
New York, NY 10032
Tel: (1) 212-305-1319, 646-426-3876

Ricardo Madrid, MD

George A Jervis Clinic
1050 Forest Hill Rd
Staten Island, NY 10314
Tel: (1) 718-494-5141

Julie McLaughlin, Genetic Counselor

Genetic Counselor, North Shore University Hospital
1554 Northern Blvd, Ste 204
Manhasset, NY 11030
Tel: (+1) 516-365-3996

Fabreena Napier, MD

Assistant Professor of Clinical Neurology
Co-Director, Muscular Dystrophy Association Clinic | Montefiore Medical Center
The Children’s Hospital at Montefiore
3415 Bainbridge Ave
Bronx, NY 10467
Tel: (1) 718-920-4321

David Schick, MD

Adjunct Professor, Department of Neurology
NYU Langone Health
247 Third Avenue, Suite 203
New York, NY 10010
Tel: (1) 212-353-0505

Lan Zhou, MD

Neurologist-in-Chief, Dept. of Neurology at Hospital for Special Surgery (HSS)

HSS – Belaire Building

525 East 71st Street, 5th Floor

New York, NY 10021

Tel: (1) 212-606-1880

North Carolina

Michael Cartwright, MD

Atrium Health, Wake Forest Baptist – Neurology
500 Sheperd St, Suite 300
Winston-Salem, NC 27103
Tel: (1) 336-716-4101
mcartwri@wakehealth.edu

Vinay Chaudhry, MD

UNC Health

300 Meadowmont Village Circle, Ste 202

Chapel Hill, NC 27517

Tel: (1) 984-974-4401

Clover Genetics – Genetic Counseling

Urvi Desai, MD

Neurologist, Specialities: Neurology, Neuromuscular Medicine, Sleep Medicine
Atrium Health Neurosciences Institute
1010 Edgehill Road North
Charlotte, NC 28207
Tel: (1+) 704-446-1900

Anahit Mehrabyan, MD

Clinical Assistant Professor, Division of Neuromuscular Disorders, Department of Neurology

University of North Carolina at Chapel Hill

170 Manning Dr, CB 7025

Chapel Hill, NC 27599

Tel: (1) 984-974-4401

Fax: (1) 984-974-8825

Email: mehrabac@neurology.unc.edu

Rachana K Gandhi Mehta, MBBS

Assistant Professor Of Neurology
Department of Neurology
Atrium Health, Wake Forest Baptist
500 Shepherd St, Suite 300
Winston-Salem, NC 27103
Tel: (1) 336-716-4101
rgandhi@wakehealth.edu

Dmitriy Niyazov, MD

Medical Genetics Specialist
Duke Children’s Health Center Genetics Clinic
2301 Erwin Rd.
Durham, NC 27710
Tel: (1) 919-684-2036

Araya Puwanant, MD

Assistant Professor, Neuromuscular Division, Department of Neurology,
Wake Forest School of Medicine
Board Certified in Neuromuscular Medicine and Psychiatry and Neurology
Member of the American Academy of Neurology, the American Association of Neuromuscular and Electrodiagnostic Medicine and the Muscle Study Group
Atrium Health Wake Forest Baptist Neurology – Shepherd
500 Shepherd St., Ste 200
Winston-Salem, NC 27103
Tel: (1) 336-716-4101
apuwanan@wakehealth.edu

Edward C. Smith, MD

Pediatric Neurologist
Duke University
Lenox Baker Children’s Hospital
3000 Erwin Road
Durham, NC 27705
Tel: (1) 919-668-0477
Fax: (1) 919-660-8640

North Dakota

Jau-Shin Lou, MD, PhD, MBA

Professor and Chair, Dept of Neurology
Roger Gilbertson Endowed Chair in Neurology
Sanford Health and University of North Dakota School of Medicine & Health Science
Sanford Brain & Spine Center
2301 25th St S
Fargo, ND 58103
Tel: (1) 701-234-4036
Email: Jau-shin.lou@sanfordhealth.org

Ohio

Lindsay N. Alfano, PT, DPT, PCS

Physical therapist and researcher specializing in the care and evaluation of patients with neuromuscular disorders, Principal Investigator in Center for Gene Therapy, Assistant Professor of Pediatrics, OSU.
The Abigail Wexner Research Institute at Nationwide Children’s Hospital
Center for Gene Therapy
700 Children’s Dr, AB7036
Columbus, OH 43205
Tel: (1) 614-722-4515
Email: Lindsay.Alfano@nationwidechildrens.org, nmdtrialinfo@nationwidechildrens.org

Clover Genetics – Genetic Counseling

Anne Connolly, MD

Chief of the Division of Neurology at Nationwide Children’s Hospital, professor of Pediatrics at The Ohio State University College of Medicine, and a member of the Jerry R. Mendell Center for Gene Therapy in the Abigail Wexner Research Institute.

Nationwide Children’s Hospital
700 Children’s Dr
Columbus, OH 43205
Tel: (1) 614-722-4633

Ryan Drake, DO

NeuroCare Canton
4048 Dressler Rd NW
Canton, OH 44718
Tel: (1) 330-494-2097

Kevin M. Flanigan, MD

Director, Center for Gene Therapy
The Research Institute at Nationwide Children’s Hospital
700 Children’s Dr
Columbus, OH 43209, USA
Tel: (1) 614-355-2947
Email: kevin.flanigan@nationwidechildrens.org
Website: http://www.nationwidechildrens.org/kevin-m-flanigan

Todd Hayes, DO

Neurologist, Riverhills Neuroscience
4805 Montgomery Rd, Ste. 410
Cincinnati, OH 45212
Tel: (1) 513-612-1111

Hani Kushlaf, MD

Associate Professorof Clinical
Director, Neuromuscular Medicine Fellowship
Director of Neuromuscular Research
Director of Neuromuscular Disorders Division
Department of Neurology & Rehabilitation Medicine
University of Cincinnati Gardner Neuroscience Institute
3113 Bellevue Ave, Suite 3300
Cincinnati, OH 45219
Tel: (1) 513-475-8730

Yuebing Li, MD, PhD

Cleveland Clinic
Neuromuscular Center, S90
9500 Euclid Avenue
Cleveland, OH 44195
Tel: (1) 216-444-5559

Jennifer Roggenbuck, MS, LGC

Licensed Genetic Counselor
Assistant Professor, Clinical
The Ohio State University College of Medicine
Human Genetics
2012 Kenny Rd.
Columbus, OH 43221
Tel: (1) 614-293-6694
Jennifer.Roggenbuck@osumc.edu

Robert Shields, MD

Cleveland Clinic, Neuromuscular Center
9500 Euclid Ave
Cleveland, OH 44195
Tel: (1) 216-444-5551

Cuixia Tian, MD

Pediatrics and neurology resident at Cincinnati Children’s Hospital Medical Center
333 Burnet Ave
Cincinnati, OH 45229
Tel: (1) 513-636-4222
cuixia.tian@cchmc.org

Oklahoma

Brent Beson, MD

INTEGRIS Medical Center
4221 S. Western Ave, Suite 5000
Oklahoma City, OK 73109
Tel: (1) 405-644-5160

Joshua Kershen, MD

INTEGRIS Neuroscience Institute
4221 S. Western Ave, Ste 5000
Oklahoma City, OK 73109
Tel: (1) 405-644-5170

Oregon

Clover Genetics – Genetic Counseling

David Wilkinson, MD

Providence St. Vincent Medical Center
9135 SW Barnes Rd, Suite 461
Portland, OR 97725
Tel: (1) 503-216-1150

Pennsylvania

Clover Genetics – Genetic Counseling

Provides telehealth genetic counseling services to multiple states
Genetic Counselors:
Andrew McCarthy, MS, CGC, Founder and CEO of Clover Genetics
Hannah Krammes, MS, CGC
Tel: (1) 412-440-8645
Email: info@clovergenetics.com
https://clovergenetics.com/

Hristelina S. Ilieva, MD, PhD

Assistant Professor
Medical Director, ALS Center
Neurologist, Jefferson University

909 Walnut St, COB, 2nd Fl

Philadelphia, PA 19107

Tel: (1) 215-955-8800

Andrew McCarty, MS, CGC

Founder and CEO of Clover Genetics | Licensed Certified Genetic Counselor
Pittsburgh based Telehealth Genetic Counseling Services
Provides telehealth services to multiple states
Tel: (1) 412-440-8645
Email: info@clovergenetics.com
https://clovergenetics.com/

Paul T McIntosh, MD

Neurologist with expertise in muscular diseases, including LGMDs
Penn Neuroscience Center – Neurology
Perelman Center for Advanced Medicine
South Pavilion, 2nd Fl
3400 Civic Center Blvd
Philadelphia, PA 19104
Tel: (1) 800-789-7366

Colin Quinn, MD

Penn Medicine, Penn Neuroscience Center – Neurology
South Pavilion, 2nd Fl
3400 Civic Center Blvd
Philadelphia, PA 19104
Tel: (1) 800-789-7366

Zachary Simmons, MD

Penn State Neuroscience Institute
30 Hope Dr, Suite 1300
Hershey, PA 17033
Tel: (1) 717-531-3828

Alison Walsh, MD

Lehigh Valley Health Network
1250 S Cedar Crest Blvd
Suite 405
Allentown, PA 18103
Tel: (1) 610-402-8420

Sabrina Yum, MD

Pediatrict Neurologist, Children’s Hospital of Philadelphia
3401 Civic Center Blvd
Philadelphia, PA 19104
Tel (+1) 800-879-2467

Puerto Rico

Jose Carlo, MD, FAAN

Neurologist
University Hospital, 5th Fl, Neurology
Medical Center
San Juan, PR 00936
Tel: (1) 787-758-7910

Clover Genetics – Genetic Counseling

Carlos Otero-Rodriguez, MD

Specialties: Neurology, Pain Medicine
2225 Ponce By Pass Edificio Parra, Suite 305
Ponce, PR 00717
Tel (1) 787-259-3574

Email: drcarlosoterorodriguez@gmail.com

Rhode Island

Clover Genetics – Genetic Counseling

George Sachs

Neurologist, Brown Biology and Medicine, Dept of Neurology
Lifespan – Brown Neurology
APC Building
110 Lockwood St, 5th fl
Providence, RI, 02903
Tel: (1) 401-444-3032

South Dakota

H. Eugene Hoyme, MD

Specialties: Medical Genetics, Pediatrics – Genetics
Sanford Children’s Specialty Clinic
1600 W 22nd St
Sioux Falls, SD 57117
Tel: (1) 605-312-1000

Tennessee

Tulio Bertorini, MD

Semmes-Murphey Clinic
6325 Humphreys Blvd
Memphis, TN 38120
Tel: (1) 901-624-2960

Elena Caron, MD

Assistant Professor, University of Tennessee Health Science Center
UT LeBonheur Pediatric Specialists
848 Adams Ave
Memphis, TN 38103
Tel: (1) 901-287-7185

Clover Genetics – Genetic Counseling

Richard S. Finkel, MD

Director of Translational Neuroscience Research
St. Jude Children’s Research Hospital
262 Danny Thomas Pl
Memphis, TN 38105
Email: richard.finkel@stjude.org

Darian Reddick, MD

Ascension Medical Group, St. Thomas Mt. Juliet
Howell Allen Clinic
77 Belinda Pkwy, Ste 202
Mt. Juliet, TN 37122
Tel: (1) 615-222-1251

Mark Ross, MD

Dignity Health
3 Maryland Farms
Brentwood, TN 37027
Tel: (1) 800-348-4565

N. Robb Whaley, MD

Member of the American Association of Neuromuscular and Electrodiagnostic Medicine, American Academy of Neurology and Christian Medical and Dental Association.
Tri State Mountain Neurology
1321 Sunset Drive, #11
Johnson City, TN 37604
Tel: (1) 423-928-6174

Texas

Sara Austin, MD

Ascension Medical Group Seton Neurology
1600 W 38th St Ste 200
Austin, TX 78731
Tel: (1) 512-324-3540

Karen Bontia, MD

Neurology and Neuromuscular medicine
North TX Institute of Neurology & Headache
6201 Dallas Parkway
Plano, TX 75024
Tel: (+1) 972-403-8184

Clover Genetics – Genetic Counseling

Adam Horvit, MD

Central Texas Neurology Consultants
16040 Park Valley Dr.
Bldg B, Ste #100
Round Rock, TX
Tel: (+1) 512-218-1222

Yessar Hussain, MD

Austin Neuromuscular Center
4705 Spicewood Springs Rd.
Austin, TX 78759
Tel: (1) 512-920-0140

Darine Kassar, MD

Focus: managing neuromuscular disorders (i.e. muscular dystrophies, neuromuscular junction disorders, inherited and acquired neuropathies, etc.) in addition to performing nerve conduction studies and electromyography (EMG).
Houston Methodist Sugar Land
Medical Office Bldg 3
16605 SE Freeway, Ste 600
Sugar Land, TX 79479
Tel: (1) 281-274-7595

Shaida Khan, DO

Focus: myasthenia gravis and muscular dystrophy
Assistant Professor in the Department of Neurology at UT Southwestern Medical Center.
UT Southwestern Neurology Clinic
James W. Aston Ambulatory Care Center
5303 Harry Hines Blvd, Fl 8
Dallas, TX 75390
Tel: (1) 214-645-8800
Email: aston-neuromuscular@utsouthwestern.edu

Mohsin Maqbool, MD

Specializes in General Child Neurology and Sleep Disorders
Medical Director and designated Sleep Specialist of ‘Pediatric Sleep Institute’ in Plano, TX
Texas Child Neurology
4032 McDermott Rd. Ste: 100
Plano, TX 75024
Tel: (1) 972-769-9000

Alan W. Martin, MD

Clinical Director of the Neuromuscular Center at The Institute for Exercise and Environmental Medicine
at Presbyterian Hospital, Dallas, Texas
Texas Neurology
6080 N Central Expy, Ste 100
Dallas, TX 75206
Tel: (1) 214-827-3610

Arun Nagaraj MD

Focus: Multiple Sclerosis, General Neurological Disorders
Texas Neurology
6080 N Central Expy, Ste 100
Dallas, TX 75206
Tel: (1) 214-827-3610
Tel: (1) 513-241-2370

Jinfon Ong, MD

Medical Director, MDA Clinic
Faculty member, Child Neurology residency program at Dell Medical School
Magella Medical Associates
7940 Shoal Creek Blvd, Ste 100
Austin, TX 78757
Tel: (1) 512-494-4000

Milvia Pleitez, MD

Assistant Professor, Baylor College of Medicine, Neuromuscular Clinic, Houston
Focus: Neuromuscular diseases – muscular dystrophies, Myasthenia Gravis and ALS

Baylor College of Medicine Neuromuscular Clinic
7200 Cambridge #9a
Houston, TX 77030
Tel: (1) 713-798-2273
Fax: (1) 713-798-7709

Ratna Bhavaraju-Sanka, MD

Assistant Professor of Neurology,
Director, UT Medicine Neurology Clinic,
University of Texas Health Science Center at San Antonio
8300 Floyd Curl Drive, MC 7883
San Antonio, TX 78229
Email: BhavarajuSan@uthscsa.edu

Aziz Shaibani, MD

President of the Texas Neurological Society
Clinical Professor of Medicine at Baylor College of Medicine
Adjunct Professor of Neurology, Kansas University Medical Center
Clinical Assistant Professor of Neurology at the University of Texas Health Science Center at Houston
Nerve and Muscle Center of Texas
6624 Fannin St, #1670
Houston, TX 77030
Tel: (1) 713-795-0033

V. V. Vedanarayanan, MD

Child and adolescent neurology
Dell Children’s Medical Group
4910 Mueller Blvd, Ste 300
Austin, TX 78723
Tel: (1) 512-628-1855
vvedanarayanan@austin.utexas.edu

Matthew Wicklund, MD

Professor of Neurology
University of Texas San Antonio
Graduate School of Biomedical Sciences
UT Health Science Center
8300 Floyd Curl Dr.
San Antonio, TX 78229
Tel: (1) 210-450-9700

Utah

Russell Butterfield MD, PhD

Departments of Neurology and Pediatrics
University of Utah, School of Medicine
Clinical Neurosciences Center
175 N Medical Center Drive East
Salt Lake City, UT 84132, USA
Tel: (1) 8015857575
Email: russell.butterfield@hsc.utah.edu
Website: http://healthcare.utah.edu/fad/mddetail.php?physicianID=FM00017705

Summer Gibson, MD

Associate professor of neurology and chief of the Neuromuscular Medicine Division at the University of Utah
University of Utah Medical Group
Clinical Neurosciences Center
175 N. Medical Dr.

Salt Lake City, UT 84132
Tel: (1) 801-585-7575

Vermont

Clover Genetics – Genetic Counseling

Virginia

Clover Genetics – Genetic Counseling

Emily S Doherty, MD

Carilion Clinic
4348 Electric Rd
Roanoke, VA 24018
Tel: (1) 540-985-8454

Debbie Eggleston, RN, MSN
Adult Neurology

University of Virginia
81 Hospital Dr.
Charlottesville, VA 22903
Tel: (1) 434-243-5932

Stacey Epps, MD

Bon Secours Neurology Clinic
11601 Ironbridge Rd, Suite 207
Chester, VA 23831
Tel: (1) 804-285-6880

Nicholas E Johnson, MD, MSci, FAAN

Children’s Hospital of Richmond at VCU
417 N. 11th St, 5th fl.
Richmond, VA 23298
Tel: (1) 804-828-2467

Daniel G. Larriviere, MD

Inova Medical Group – Neurology 1
1500 N Beauregard St, #300
Alexandria, VA 22311
Tel: (1) 703-845-1500

Scott A. Vota, DO

Bon Secours Neurology Clinic
8266 Atlee Rd, Suite 330
Mechanicsville, VA 23116
Tel: (1) 804-325-8720

Washington

Barbara Distad, MD

Specialties: Neurology and neuromuscular medicine
University of Washington Medical Center – Neurology Clinic
1959 NE Pacific Street
Seattle, WA 98195
Tel (+1) 206-598-7688

Jai Hira, MD

Specialty: Neurosciences
Neurology Clinic at Meridian Pavilion
Specialty Care Meridian Pavilion
11011 Meridian Ave N
Seattle, WA 98133
Tel: (+1) 206-668-0111

Benjamin Koo, MD

Specialties: Internal Medicine, Neurology, Neuromuscular Medicine
Vancouver Clinic
501 SE 172nd Ave
Vancouver, WA 98684
Tel: (1) 360-882-2778

Dr. Eric E Kraus, MD

Board certified neurologist, director of the UWMC Neurology Clinic and a UW associate professor of Neurology
University of Washington Medical Center – Neurology Clinic
1959 NE Pacific Street
Seattle, WA 98195
Tel (+1) 206-598-7688

Leo Wang MD, PhD

Focus: neuromuscular disorders and muscular dystrophies
University of Washington Medical Center
1959 NE Pacific St.
Seattle, WA 98195
Tel: (1) 206-598-7688

Michael Weiss, MD

Director of the Neuromuscular Diseases Division of the Department of Neurology at the University of Washington
Director of the EMG Laboratory and director of the Muscular Dystrophy Association Care Center, both located at UW MC
Focus: Electrodiagnostic medicine, Neurology, Neuromuscular diseases
University of Washington Medical Center
1959 NE Pacific St.
Mail Box 356157, #356115
Seattle, WA 98195
Tel: (1) 206-598-7688

Washington, DC

Joseph M. Choi, MD

Attending Physician, MDA and ALS clinic. Assistant Professor, Department of Neurology
Georgetown University Medical Center
Pasquerilla Healthcare Center, 7th Floor
3800 Reservoir Rd NW
Washington, DC 20007
Tel: (+1) 202-444-8525

Michael D. Sirdofsky, MD

Director, EMG Laboratory, Neuromuscular Division, Director, MDA Clinic, Associate Professor, Department of Neurology. Specialty: Neurology, Peripheral Nerve Disorders, Electrophysiology, EMG/Neuromuscular diseases
Georgetown University Medical Center, Department of Neurology
Pasquerilla Health Center, 7th Floor
3800 Reservoir Rd NW
Washington, DC 20007
Tel: (+1) 202-444-2384

West Virginia

Clover Genetics – Genetic Counseling

Shumaila Sultan, MD

Neurology, Clinical focus: neuromuscular disorders
West Virginia University (WVU) Medicine
Neurology Clinic, Physician Office Center
1 Medical Center Dr.
Morgantown, WV 26506
Tel: (1+) 304-598-6127

Wisconsin

Clover Genetics – Genetic Counseling

Juan Jose Figueroa, MD

Assistant Professor
Neuroscience Center – Specialty Clinics
900 N 92nd St.
Milwaukee, WI 53226
Tel: (1) 414-805-3666

Matthew Harmelink, MD

Assistant Professor, Pediatric Neurology
MDA Clinic
Medical College of Wisconsin and Children’s Hospital of Wisconsin
8915 W Connell Ct
Milwaukee, WI 53226
Tel: (1) 414-337-8702
Email: mharmelink@mcw.edu

Wyoming

Clover Genetics – Genetic Counseling

THE DYSFERLINOPATHY JOURNEY

Find a Clinician

THE DYSFERLINOPATHY JOURNEY

Find a Clinician

Find a Clinician

Bla/J mice (B6.A-Dysfprmd/GeneJ)

Bla/J mice (B6.A-Dysf^prmd/GeneJ)