Home ❯ Dysferlin Registry ❯ Inquire

About the Dysferlin Registry

The Dysferlin Registry is a free patient registry exclusively for individuals who have been genetically diagnosed with dysferlinopathy, also referred to as LGMD2B, LGMDR2, Miyoshi Myopathy 1, through the identification of mutations in the DYSF gene.

In addition, the Dysferlin Registry has the potential to serve as an international recruiting tool for studies of dysferlinopathy.

I Want to Join the Registry

If you are interested in joining, you can complete and submit the secure application below and once we receive it we will contact you with the next steps.

Dysferlin Registry Application

I Have Questions, but Don’t Want to Register

If you have questions about the registry, or dysferlinopathy, please complete and submit this contact form and we will connect with you.

Contact Form