DYSFERLIN REGISTRY

Dysferlin Registry Application

DYSFERLIN REGISTRY

Dysferlin Registry Application

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Before You Start!   Unless you are under 18 years of age or under legal guardianship, you must be the person who has or suspects they have dysferlinopathy (e.g. the patient) to complete this form. If you are a family member or friend, please send the link for this application to the person with potential dysferlinopathy to complete on their own.