The study is being conducted at 16 centers across the USA, Europe, Japan, Korea and Chile. Recruitment will begin on a rolling basis as each site obtains the necessary regulatory approval. Please check below for location, recruitment status, clinic contact information, and number of recruited participants.
The goal is to recruit 200 genetically confirmed dysferlinopathy patients. This includes both ambulant and non-ambulant individuals; however, there are more spots for those who are ambulant then non-ambulant. COS2 is open to individuals who participated in COS, as well as new participants. However, please note that if you participated in the original COS study you are NOT automatically part of the COS2 study. Both original COS participants and new participants must contact the relevant COS2 site and go through the recruitment process if they are interested in participating.
For questions on whether you are genetically confirmed or how to get genetically confirmed with dysferlinopathy please contact the Jain Foundation at email@example.com or 425-882-1492.