It is often difficult to obtain a genetic analysis and we encourage anyone suffering from LGMD or Miyoshi myopathy to register with us. We will help you determine whether or not you have LGMD2B/Miyoshi. Register soon so that you can be considered for any clinical trials that are currently recruiting.
On February 26, 1981, I was born a healthy baby girl. I had what most would call a normal childhood. I was very active and played soccer and swam for my neighborhood swim team. However, about six months after my sixteenth birthday, I noticed I was having difficulty climbing stairs.
The Jain Foundation is happy to share a recent article from Stanford showcasing Tom Rando’s fantastic leadership and Katie Maguire’s work to develop an exciting new mouse model.